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INTRODUCTION The natural history and treatment of spinal muscular atrophy (SMA) is currently being transformed by the development and availability of novel therapies, with significant related changes in practice. This not only has important implications for the health and wellbeing of patients with SMA and their families, as well as improves the quality of care. OBJECTIVE The present study aimed to investigate the processes and factors that influence treatment and healthcare decisions for children and adults with SMA and their families
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